Below is a collection of organizations providing supports and services to individuals and families of children with special healthcare needs. Condition specific organizations can be a wonderful place to gain information about your child's particular disability or chronic health condition. Connecting with other families that have a family member with the same diagnosis can give you additional insight and emotional support.
If you do not see what you are looking for, try searching the Family SHADE database or calling Family SHADE at 1-855-755-7423.
- 321foundation
- All the Difference
- American Lung Association
- Asperger’s Alliance Delaware
- Autism Delaware
- BlindSight Delaware (formerly the Delaware Association for the Blind)
- Brain Injury Association of Delaware (BIADE)
- Children and Adults with Attention Deficit Disorder (CHADD) – Greater Newark
- Crohn’s and Colitis Foundation – Delaware Valley Chapter
- Decoding Dyslexia Delaware
- Delaware Hands & Voices
- Down Syndrome Association of Delaware (DSA)
- Epilepsy Foundation of Delaware
- Fetal Alcohol Spectrum Disorder (FASD) Taskforce
- Hearing Loss Association of Delaware
- JDRF
- Leukemia and Lymphoma Society of DE
- Little People of America
- Lupus Foundation of America
- Lyme Disease Assoc. of the Eastern Shore of Maryland
- Mental Health Association of Delaware (MHA)
- Narcolepsy Network
- National Alliance on Mental Illness Delaware (NAMI)
- National Multiple Sclerosis Society, Delaware Chapter
- Prader-Willi Syndrome Association USA
- Spina Bifida Association
- Tourette Syndrome Association
- United Cerebral Palsy (UCP), Delaware Chapter