General Advocacy Organizations

The agencies and organizations listed in this section can provide resources that help you learn about services for people with disabilities in Delaware and advocate for yourself and your family members. They can help you connect with other families of children with special healthcare needs, find out about workshops and conferences, and get to know the services within the community. You can also learn to advocate for the changes you feel are needed in services provided to children with special healthcare needs.

Center for Disabilities Studies at the University of Delaware (CDS)
programs, outreach, advocacy and research that supports people with disabilities

Delaware Insurance Commissioner’s Office
resolve conflicts, file complaints with insurance companies and health care providers

Developmental Disabilities Council (DDC)
advocacy, education and funding for programs to benefit people with developmental disabilities

Family Advisory Council at Nemours/Alfred I. duPont Hospital for Children
family council advising Nemours/Alfred I/ duPont Hospital

Governor’s Advisory Council for Exceptional Citizens (GACEC)
advise and advocacy on education and related services

Independent Resources, Inc.
evaluation and guidance in independent living, advocacy, training and outreach

Interagency Coordinating Council (ICC)
council that advises on the Birth to Three early intervention system

National Youth Leadership Network
national voice for young leaders with disabilities

State Council for Persons with Disabilities (SPCD)
advocacy and review of policy and laws related to individuals with disabilities