Condition Specific Organizations

Below is a collection of organizations providing supports and services to individuals and families of children with special healthcare needs. Condition specific organizations can be a wonderful place to gain information about your child’s particular disability or chronic health condition. Connecting with other families that have a family member with the same diagnosis can give you additional insight and emotional support.

If you do not see what you are looking for, try searching the Family SHADE database or calling Family SHADE at 1-855-755-7423.

321foundation
events where families of children with Down syndrome can come together in support

All the Difference
services for sensory integration issues, evaluation, and advocacy

American Lung Association
improving lung health and preventing lung disease through education, advocacy and research

Asperger’s Alliance Delaware
social group for people with Aspergers ages middle school through early adulthood

Autism Delaware
family support, recreational events, workshops, employment & clinical services and advocacy

BlindSight Delaware (formerly the Delaware Association for the Blind)
The mission of BlindSight Delaware is to support the independence and quality of life for people in Delaware who are blind or visually impaired.

Brain Injury Association of Delaware (BIADE)
support, education and advocacy for traumatic brain injury survivors and their families

Children and Adults with Attention Deficit Disorder (CHADD) – Greater Newark
meetings and events for families of children with ADD and ADHD

Crohn’s and Colitis Foundation – Delaware Valley Chapter
education programs, support groups, community awareness and advocacy

Decoding Dyslexia Delaware
supporting people with dyslexia and their families

Delaware Hands & Voices
support and social & educational programs supporting children who are deaf / hard of hearing

Down Syndrome Association of Delaware (DSA)
social and educational programs, outreach, advocacy and support

Epilepsy Foundation of Delaware
support, programs, professional training, advocacy and emergency funding

Fetal Alcohol Spectrum Disorder (FASD) Taskforce
leadership in addressing Fetal Alcohol Syndrome Disorders

Hearing Loss Association of Delaware
support, education and advocacy for individuals with hearing loss

JDRF
type 1 diabetes support and fundraising for a cure

Leukemia and Lymphoma Society of DE
Weekly online chats, support groups, information services

Little People of America
resources, support and information for people with dwarfism and their families

Lupus Foundation of America
Education, support groups and emergency financial assistance

Lyme Disease Assoc. of the Eastern Shore of Maryland
Serving the Delmarva Peninsula, including the state of Delaware

Narcolepsy Network
Narcolepsy education and support

National Multiple Sclerosis Society, Delaware Chapter
programs and fundraising for people affected by Multiple Sclerosis

Prader-Willi Syndrome Association USA
national organization for individuals affected by Prader-Willi Syndrome

Spina Bifida Association
programs and services for individuals with Spina Bifida

Tourette Syndrome Association
Delaware Tourette Syndrome Association offers two monthly support groups

United Cerebral Palsy (UCP), Delaware Chapter
programs and services for individuals with Cerebral Palsy and other disabilities